Hi! Today is Day 42 of my 42-day Temodar chemotherapy cycle. That means the cycle is officially over. Most oncologist offices have a bell that patients can ring when they complete a cycle. Since I finished my cycle at home, I had to make do with a tiny crystal bell Kelly and I got on our wedding day. It may not make much noise, but I'm not going to miss this chance to celebrate!
Next week, I have a visit with the neurosurgeon and neuro-oncologist here in Wauwatosa to discuss my latest brain MRIs. I'm not sure where things go from there, but my assumption (based on a hope that the MRIs do not show the presence of new brain mets) is that I will be going down to Houston mid-November to discuss a new treatment for the abdominal lesions. Hopefully it will be something I can do at home.
I just received a new ankle brace at Physical Therapy yesterday. My old brace was a stock model that held my ankle at a 90-degree angle (the brace stabilizes my ankle and holds my foot up so that it doesn't drag when I walk). The new brace is molded to my exact leg shape and holds my ankle at an approximately 75-degree angle (in other words, it pushes my toes up). This actually pushes the toes out of the way so that I can swing my left leg directly forward when I walk rather than circumducting it (i.e. swinging it out to the side).
Since getting back from our little vacation, I have been holding down the house during the days. Our wonderful neighbors, the Murphys, let me borrow their nanny, Katie, to watch Finn during some of my PT and OT sessions. What a huge help! Katie has been their nanny ever since Abe (their oldest, who is in Regan's class) was a baby. She knows our kids well, and we know she is a great caregiver. We also have had friends and neighbors delivering hot meals several nights each week. This has been such a gift to us because I'm pretty much worn out by the end of each day and Kelly has enough other things to do when she gets home without spending a couple of hours at the stove. Plus, the food has been excellent! I don't know when I last ate so well!
I'm posting some pictures Aubrey and her friend, Caroline, took of Finn recently. The other picture is of Aubrey, Regan, and Jack before the Wilson School Fall Social. They dressed up as a Spice Girl, a punk rock girl, and a pirate respectively.